Hope for Lillian Grace Reindeer Run 5K

Losco Park
Losco Park, Hood Road south, Jacksonville, FL, United States

Saturday, December 1, 2018

5K at 9:00 AM | 1 Mile at 8:30 AM


About this Race

Winter of 2013, Lillian Grace Ball was born with a very rare, complex disease known as Autosomal Recessive Polycystic Kidney Disease (ARPKD). The disease is a lifelong diagnosis in which those afflicted fight daily to maintain blood pressure levels, proper nutrition, and most importantly liver & kidney functions. The regular maintenance requires numerous on-going medications, medical supplies, lab testing & monitoring, imaging, & specialist appointments. The ‘Hope for Lillian Grace’ foundation was created as a tax-exempt Florida 501(c)(3) organization to help support the Ball family & others with these on-going costs associated with ARPKD. Lillian Grace fights every day. The inaugural Hope for Lillian Grace Reindeer Run took place in December 2016 in an effort to provide additional support for Lillian Grace! We welcome any & all individuals, running groups, and sponsors to be a part of this awesome event!  We encourage anyone connected to kidney disease to come walk, run, push a stroller, or just take it all in!

Thursday, November 16th, 2017, the Ball family met with the UF Shands Transplant Team. Lillian Grace underwent an entire day of interviewing & testing to determine her transplant eligibility. In months leading to the appointment, Lillian Grace’s kidney function had began to decrease leading to the evaluation. Since then, Lillian Grace has been determined as a good candidate for transplant and is currently listed as inactive on the kidney transplant list.  The Ball family has started preparing for the inevitable kidney transplant. Lillian Grace’s kidney function since November has remained constant, and she will not go active until her function falls lower.  Until then, her family & friends have started being evaluated as potential matches for kidney transplant.

The Ball family continues to prepare as they attempt to understand the timeline for what will be the first of many transplants Lillian Grace will receive during her life.  For more background on the disease, Lillian Grace & her family, and information on transplant, please refer to the links posted below.  Again, we look forward to seeing you at the race!

https://hopeforlilliangrace.com/

https://www.facebook.com/groups/175228135976280/

https://www.kidney.org/

https://pkdcure.org/what-is-pkd/arpkd/

 

Entry Fees

5K1 Mile
Through November 21st$25$10
November 22nd - November 30th$30$10
Day of Race$35$10

Sorry, there are absolutely no refunds or transfers!

 

Packet Pickup

Packets will be available for pick up at the 1st Place Sports Baymeadows store location on Friday, November 30th from 10:00 AM – 5:00 PM. If you aren’t able to make it to the store, packets will be available at Chick-fil-a Mandarin from 6:00 PM – 8:00 PM. All packets will then be moved to the race site for race day pick up beginning an hour before the race.

Baymeadows Store: 3931 Baymeadows Road, Jax, FL 32217

Chick-fil-A Mandarin: 3280 Oak Bluff Ln, Jacksonville, FL 32257

Awards

Awards will be presented to the top three men and women overall, first master’s male and female overall, and the top three in each of the following male and female age groups: 10 & under, 11-13, 14-19, 20-24, 25-29, 30-34, 35-39, 40-44, 45-49, 50-54, 55-59, 60-64, 65-69, 70-74, 75-79, 80+.

1 Mile Fun run finishers will receive a finisher medal.

Parking

There is parking available at Losco Park.